Friday, January 14, 2011

Some good days, some not so good days

Marty and I welcome the days and nights when he is not in terrible discomfort. These are called "good"days, relative to the other sort, which are rather torturous for him.
He had several "good" days this week. We did our errands with ease, saw local family members happily, and even went to the movies together. Marty's energy is nothing like it used to be, even on a "good" day, but we make the most of his respective ease when we can, and do our best to enjoy a normal life, even though nothing about the life we are living is really normal. Sleep is currently our favorite sport. There is never enough, but we pursue it with dedication.

Now, his days are not so good. Intestinal cramping has returned, and given recent history, nausea and vomiting will follow soon. Sleep becomes a necessity that we can barely accomplish.

We deeply hope that our meeting with a nutrition expert next week will provide some guidance for comfort, as well as for potential weight gain for Marty. The cramping and nausea deplete him further as eating becomes ever more challenging for him. The lack of nutrition only increases his discomfort, as his tissues become less and less resilient without food.

My thanks to kind friends who have provided contact information for nutrition experts, Qigong instructors and general support. Your efforts are deeply appreciated!

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